Mental Retardation / Down Syndrome
Self Help Clearinghouse
This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Speaking For Ourselves
Model. 13 groups. Founded 1982. Self-help advocacy for people with developmental disabilities. Monthly chapter meetings. Members help each other resolve problems, gain self-confidence and learn leadership skills. Chapter development guidelines and newsletter.
Speaking for Ourselves
714 Market Street, Ste 326
Philadelphia, PA 19106
Voice: 1-800-867-3330 or 215-923-8600
National. Over 700 chapters. Founded 1950. Provides support for people with intellectual and developmental disabilities and their families. Advocacy groups and direct services. Monthly e-newsletter. Chapter development guidelines. Local group information on website.
1825 K Street NW, Ste 1200
Washington, DC 20006
Model. 30 groups in Washington. 7 high school clubs. Founded 1977. Self-help advocacy organization created by and for people with developmental disabilities. Provides help in starting new chapters. Monthly e-newsletter called Chapter Chatter.
People First of Washington
P.O. Box 648
Clarkston, WA 99403-2079
VOR - Speaking Out for People with Intellectual and Developmental Disabilities
National. 130 affiliated groups. Founded 1983. Works to empower families of persons with intellectual and developmental disabilities through information and advocacy. Weekly e-mail updates and print newsletter for members. Networking, information and referrals, advocacy, phone support and conferences. Annual dues $40.
836 S. Arlington Heights Rd., #351
Arlington Heights, IL 60007
Down Syndrome and Autistic Spectrum Disorder
Online. 1400+ members. Founded 1997. Opportunity for families and professionals to discuss the unique aspects of supporting a person who is dually diagnosed with Down syndrome autism spectrum disorder.
Online. Founded 1989. A UK-based organization of LGBT people who self-identify as disabled. Follows the social model of disability. Offers information, advice (on a non-professional basis) and social contact for members through online groups. Provides advocacy and campaigns on issues affecting disabled LBGT people. Provides online newsletters, news and notices.
London, UK WC1N 3XX
Website: http://www.regard.org.uk or http://facebook.com/#!/group.php?gid=131451632773 and http://uk.groups.yahoo.com/group/regardonline
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.org
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